It is never easy to give hard news, the doctors did their job with as much sensitivity for us, and Katelynn, as possible. The path that Katelynn is on has not been easy but it has made us grow and made us love each other all the more. We love this little girl as we have sacrificed so much and prayed for her. Many miracles have happened on behalf of our family and Katelynn. She is a miracle many times over.

I mentioned that Katelynn contracted another infection, this time in her GI tract. When the antibotics were given for this, tests reveled how damaged her kidneys are. Since heart surgery, which would require a heart and lung machine, is very hard on the kidneys, this issue affects the decision about her getting heart surgery. Her low and disfunctional plaetlets also complicate the surgery, especially when combined with the kidney damage. The doctors are evaluating options for her and we will know more in the next week or so-- it appears that two years is the most we can hope for Katelynn's time on earth. She is a part of our family and we are asking you to join with us this Sunday in a special prayer and fast for her. Our hope is that we can bring her home. Nathan said it best, "I just want to see her smile."

All I want for my birthday is...

Today is my Dad's birthday.. I felt awful I had completely forgotten, I have a little bit going on, still I felt bad and knew that I had no time to do anything special for him. Yesterday Grandpapa and Grandma came to visit Katelynn. While Grandma was holding Katelynn, Grandpapa was looking on he said what he wanted for his birthday, to hold Katelynn. How sweet is that! When we came in today for his birthday, all the nurses remembered and had things all ready in anticipation of Grandpa's date with his granddaughter. His big hands are very tender, and he fretted hoping to hold her just right-- he did a great job. All of these sappy women loved it.

Holding my little pearl.

Katelynn loves to hold her breathing tube, it is kinda funny some nurses will move her hand-- but those that know her don't fuss about it. Every baby has their comfort item, a cuddle bear, a favorite blanket a pacifier-- Katelynn has her ventilator tube, and why not it helps her breath. I think Katelynn's other comfort is being held by her mom and dad. Her heart rate calms and she loves to hold our hands. I can't get enough of holding Katelynn, and I don't think she gets enough either, till tomorrow my little pearl.

My dear friend Cynthia visiting from Missouri.

Katelynn has a GI infection which is quite serious. It is a complication of her poor heart function. She is being treated and needs to have a pic line placed directly in her chest because the two previous attempts in limbs have failed. The heart team meeting has been moved to Tuesday. We ask for your prayers that she stops getting infections so that she can qualify for heart surgery.

Not trying to be suspenseful here, the heart team first would let us know on monday, then wednesday and now we will have a big meeting with them on monday at 3pm then we will know when and if they are planning to do the heart surgery. Oh the wait!!