Tuesday, May 5, 2009


The Cinco de Mayo has brought us one step closer to bringing our precious girl home. After much delay on the part of the cardiologist team (what emergency?), we were informed right before we had to leave the NICU this evening that they recommend a pulmonary artery (PA) band. Because of her double outlet, right ventricle condition, the blood pumped by the heart is taking the path of least resistance: to the lungs. Her lungs are becoming overfilled, and thus stiff, with blood while the heart is insufficiently pumping to the body, which is contributing to bad kidney function. The AP band should increase pressure of blood flow to the lungs, thereby increasing blood flow to the body. The surgery is much less risky then opening her heart up to repair the defects therein, and will be an interim solution to get her off the ventilator and allow us to take her home to fatten her up. In the future, assuming she grows and improves, she could qualify for the full heart surgery that would require the heart and lung machine. We are encouraged and look forward to doing what we can so that she can progress. We want to take her home to feel more like a normal family and allow the kids to get to know her.

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