Katelynn’s heart conditions may be compromising other organ functions (lung, kidney, blood platelets, possibly liver etc.). The doctors are suggesting that her open heart surgery may need to be performed earlier than planned. (Having several months age is an advantage for survival.) There are decisions to be made.At this point, it is not known if it is poor heart function, or possibly more chromosome involvement causing the other organ problems.

But Katelynn is an amazingly strong spirit and beautiful - with a square little face and tiny nose, She has long dark hair, an inch long, She was awake today and looking at her Mom and grandma and it felt like sunshine. Charlotte